Purplegerberas's Blog

A rambling collection of my thoughts about life, my children and crafty things

Knitting knitting knitting

I’ve got the house to myself this evening so have been very organised and planned a quiet night with my sewing machine. Sadly I’ve totally got my fabric quanities wrong so can’t do the stuff I planned (not happy!) so I will make do with blogging about my most recent makes.

I’ve been on a bit of a knitting frenzy recently – its easier to sit and do in front of the tv in the evening rather than going through the faff of getting my machine out.

Firstly I made this waistcoat for Eloise –

I’d like it a bit longer and I’d made it in age 4-5 size – never mind, will adjust it next time!

Then I made this cardigan for my friend Rosemary’s new granddaughter Lily who was born on Tuesday –

I’ve not had any feedback yet – I was worried it was a little bit on the ‘rustic’ side but I’m hoping she’ll like it (and it’ll fit her in proportion!)

Any my current project is a cardigan for Samuel. The colours in hobbycraft were really depressing so I’ve gone for something a bit different. I hope its not too lairy on him. Only just started but very pleased with myself already!

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Brown Envelopes

Why do brown envelopes always mean something a bit ominous? I had a really good day yesterday then came home to find the post waiting. In it was the GP letter from Samuel’s outpatients appointment two weeks ago.

It said that the murmur has changed since his last appointment – its louder and the valve pressure has also deteriorated. The stenosis is now classed as moderate compared to mild before. Although this in itself isn’t bad it’s bothered me that if it has changed this much in three months, how long can we realistically go without him needing further treatment? I think deep down I was hoping that he would tick along with no changes for a good few years (ever the optimist!) I don’t think I really expected a negative change within 3 months. I think I also had convinced myself that I was comfortable with this whole situation and this letter has just demonstrated to me that I’m not.

It also made reference to his ‘poor start’ in life and also said considering the starting situation he has done very very well – better than they had expected. Although this is a really positive aspect it just reminded me of how bad things were – even the doctors didn’t think he’d do that well. It’s another reminder of how uncomfortable I am with things.

So, lets be positive. Samuel had another nursery visit this morning. It went very well and he didn’t cry so I’m feeling better about that. Our GP has started him on gaviscon and it seems to have helped – he is happier and more settled when feeding. I bumped into the health visitor last week and managed a conversation with her without getting upset. She tried again to say that Samuel is finds life difficult because I do. Day to day I don’t feel I find things difficult – despite the letter I am feeling very happy at the moment. I was able to just smile and say nothing and let her continue thinking I am some Munchausen by proxy mentalist. I laughed about it with Steven when I got home. A couple of months ago I would have been crying and worrying about what she thinks of me so I see this as progress!

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Cardiff

Just sharing some photos from our break in Wales last week –

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Hospital Visit

Last Tuesday Samuel had a cardiac review in Northampton. It was the first time we’d been back there since he’d been transferred to Oxford on that awful day. It was amusing standing in the car park thinking last time we were here it was very late at night, snowing and Steven was having a huge shouting session being very angry with the world!

Cardiac wise all is good. His growth rates all remain above average. I explained that we’re still having feeding problems that I am convinced is reflux. His consultant said whilst he continues to gain weight well they are reluctant to add any medication to help. He admitted that even though its frustrating for us, we just have to persist with it. The reflux comes and goes but in general he screams through two feeds a day. We’ve tried colic remedies and these made no difference. A suggestion to help was to start weaning Samuel now. I was slightly freaked out about this but he’s 15 weeks old so I suppose it’s not too bad. I’ve tried a couple of times so far and it hasn’t been a raging success.

Eloise also had an echo whilst we were there. When Samuel was diagnosed they were very interested in our family history as this tends to run in families. We are not aware of anyone else having this. To be on the safe side we asked that Eloise have a scan to check her heart. Luckily, all is good and her heart is normal. She was also a star having the scan done – she relaxed after a little bt of persuasion and the promise of some chocolate buttons.

So we’re back to the hospital in two months for the next scan. I feel we escaped this time quite unscathed. Just the battle with baby rice to contend with now!

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End of the week

So my attempts at blogging more regularly haven’t started well but hey ho.

I’ve had a good week – the sun has been shining most of the time which always helps. Spring isn’t too far away and the bulbs are starting to come up in the garden so there is optimism in the air.

Eloise has been ill with a chest infection but she’s soldiering on, enjoying a bit of ill health and medicine (she is a big hypochondriac!) I’ve been paranoid about Samuel catching it so have been watching him closely. I admit to counting his resps several times day and even putting my ear to his chest to see if I can hear any wheezing! His feet have been bluer than usual but he seems okay and is feeding well so I’ll put my paranoia on the back burner for now. We have the hospital on Tuesday so at least he’ll be seen then. The pre-appointment tension is building already though. If we get through this unscathed we’ll be good.

It was very sad to see John Radcliffe Hospital on the news, suspending paediatric cardiac surgery. The media seem to be intent on a witch hunt looking to point blame. One article in the Daily Mail really got to me for being very inaccurate so I emailed them to let them know what I thought. I know it won’t get me anywhere but writing it helped! They implied that operating on a 4 week old baby is ‘common’ and quite normal. I told them my experience of the hospital made me very very aware of the seriousness of the situation and it is a very sad fact that children with cardiac problems are at a high risk of death. I know I am bloody lucky to have my son alive. Without that hospital that wouldn’t have been possible. The papers are scaremongering with inaccurate facts. I hope the situation is resolved soon.

Busy day ahead tomorrow with an appointment at the bank to sort Samuel’s savings account then the cat to the vet – I think he has an umbilical hernia. I like to try and diagnose the cat regularly. I’m not too bad at it. Maybe I’m wasted on human health. Hospital Tuesday then off to Wales on Wednesday for a few days break – can’t wait!

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Trying to get hold of this blogging malarkey!

Right, I feel I am failing to get into blogging. I just never know what to write! After consulting my friends I have been pointed in the direction of the Simple Womans Day Book http://thesimplewomansdaybook.blogspot.com/ and that seemed like a good starting point. Thank you to Mel for the suggestion http://meltedmoment.wordpress.com/

FOR TODAY
Outside my window our new neighbour spent a very long time washing and cleaning his car. I was shocked when he even lifted the bonnet and washed underneath! I’m not that dedicated to cars. It’s just grating on me that since he moved in on Saturday the car alarm has gone off almost constantly. The whole street can hear it except him. He doesn’t even look old enough to drive (how bloody old and miserable do I sound?!)

I am thankful for my children and that they are both so happy!

From the kitchen…I cooked a casserole tonight using mutton – it was gorgeous. I am getting into using cheaper cuts of meat as well as using my slow cooker more and more. I just need to keep up the habit of using it once I am back at work next month.

I am wearing jeans that are too big for me. I’ve now lost 18.5lb and am really pleased with myself. Still a bit to go so I’m trying hard to resist the temptation to buy any new trousers yet. I’m going out tomorrow and will be wearing a pair of trousers I haven’t touched in years. It felt really good to try them on and find they were a little bit too big!

I am creating a pink cardigan for my friends new granddaughter. I’m heavily into knitting at the moment. I’ve got a pattern for a jacket for Samuel that looks far more complicated than anything I’ve tried before. I’m feeling ready for the challenge. I’m also dying to treat myself to some Rowan Biggy Print but just can’t spend that kind of money at the moment (come on the lottery win!)

I am going to Cardiff next week with Steven and the kids. It’s the Christmas break we never got when Samuel was ill. Steven and I are both really looking forward to it. (I’m also praying we see John Barrowman!) It will be great to get away for a few days and if the sun is shining like it is at the moment it will be even better.

I am reading very little at the moment. I’m struggling to get into a book as I’m usually too tired when I get to bed. I am vowing to read more blogs though for inspiration and have spent this evening messing around with google reader. How long will it last though?!

I am hoping Samuel’s appointment at the hospital goes well next week. After feeling like I’ve put most of December behind me, the anxiety of an appointment has started to built already. Apparently this is a very common phenomenon amongst heart parents called PAT – pre-appointment tension. This time next week I’m hoping I will be relaxing with a glass of wine!

Around the house it is still a tip. No matter how hard I try I never seem to get anywhere. Maybe we could blame Eloise? I’ve ordered a new rug for the lounge as ours is foul and I can never clean it. I think I’m kidding myself that a new rug will miraculously transform the room!

A few plans for the rest of the week: Doctors for me tomorrow, Christmas dinner (yes, in March) with work tomorrow, swimming on Thursday.

Here is picture for thought I am sharing… Eloise has had a sticker chart for the last two weeks to try and encourage her to get herself dressed. Her reward was a Peppa Pig necklace (her choice!) Tonight she completed her chart and was thrilled to get her necklace.

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